slow progress and meeting with a neurologist

Aron is still slowly progressing in therapy. Through the use of heavy equipment, Aron is held in a standing or walking position in attempt to stimulate his central nervous system and get him to hold up his own body. His neck stability continues to improve, and he is regaining some of the strength in his arms. He is also able, with assistance, to do things with his hands and arms. Things he can do with help: touch the top of his head, nose, mouth, and point to the ceiling. His therapist continues to be positive, and recognizes his tiny improvements.

My parents and Aron are meeting with a neurologist on December 14 to discuss possible treatment options. One thing my parents are campaigning for is a reduction in the anti-seizure medication, which can make him apathatic and drowsy. They are also hoping to get a stimulant perscribed, to see if that will aid in his progress during therapy.

We all continue to remain hopeful - each day Aron fights through the fog and participates in therapy, even if his responses are minimal - shows he can understand and he's trying, and that is really all we can ask for right now.