Tuesday, September 28, 2010
Thursday, September 23, 2010
surgery a success
My family, Amy and her family, Aron's friends, and ARON all thank you for your continuous prayers.
Tuesday, September 21, 2010
Cranioplasty this Thursday
Please pray for:
peace and calm for Aron
the skill of Dr. Lin and Dr. Owen, that God would guide their hands
quick surgery with no complications
no post op infection or bleeding of the brain
that the pieces of skull would fit well and not be rejected, but regenerated
quick awakening from anesthesia.
a turning point in Aron's recovery, that we would see rapid increases in the speed of Aron's progress and that this would be a positive step towards full and complete recovery
Friday, September 17, 2010
Thank You Priority One Ambulance..!
Yesterday Aron was transported to Kaiser Lakeview in Anaheim for his Pre-Op appointment and is scheduled for surgery there next Thursday, Sept, 23 at 11:00am. The surgery is to reattach pieces of Aron’s scull that were removed to protect his brain and allow more room to expand/heal. This is an answer to so many prayers and we have all been amazed by Aron’s progress. Thank you Joshua and Elizabeth at Priority One Ambulance for a safe transport…!
Last night while visiting Aron I asked him to follow some very specific commands while is propped up his right arm and wrist:
“Make a tight fist with your right hand” He did…
“Point your index finger while keeping your fist closed” He did…
“Hold up two fingers” Right on….
“Now three fingers” Good…
“Can you show me four “ Perfect….
“ Now open your hand and show me all five fingers” When Aron opened his hand I gave him a big high five…!
After completing this sequence of commands twice within five minutes Aron seemed worn out but alert, so I told him about my day, and Jacqie showed him pictures of His trip to Europe with Amy….. There’s nothing like spending time with a good friend.
Psalm 40:1
I waited patiently for the LORD; he turned to me and heard my cry.
Some Specific things to Pray for: A successful surgery, Speedy post-op recovery, Continued progress with physical therapy, full recovery.
-Jimmy
Monday, September 13, 2010
Three months and a day later…
The Shubin family and I thought it would be good to clarify a few things. I keep getting asked if Aron is “awake” yet. Although Aron still has a long way to go, the word “coma,” which is characterized by extreme unresponsiveness, probably doesn’t accurately describe his current state. To us, it seems more accurate to describe him as being in a state of “limited consciousness.” It just seems like Aron comes and goes. There are times when his eyes are open, and he seems very alert and responsive. There are other times when his eyes are open, but he is not fully comprehending his surroundings or responding to stimuli.
Over the weekend Aron continued to move his toes, legs, and fingers in response to commands. He has even been able to point two fingers when he is asked. When I was leaving on Sunday afternoon, we asked Aron to wave goodbye. He wasn’t able to wave his whole hand, but he distinctly waved his thumb up and down. He also seems to be gaining better control over his fingers. As I sit there holding, squeezing, or caressing his hand, he will respond by squeezing back or moving his thumb up and down my hand. All of this takes a lot of effort, and often wears Aron out so that he goes into a state that is less alert.
It’s difficult to be patient as he comes and goes, but we need to be reminded of how far he’s come and how faithful God has been in the midst of our pain. My friend Jeff reminded me of how present God has been throughout this whole journey. He wrote me, “He was there when Aron had a 50/50 chance; He was there when Aron stabilized; He was there when Aron squeezed your hand and opened his eyes; He was there when Aron went off the ventilator; He was there when we prayed and cried; He is there now and will continue the good work He started. The Lord is there for His people.”
The last few months feel like years to me, and it’s easy to start feeling weary. I need to keep remembering that God has not abandoned Aron or me or the Shubin family. He will continue to show Himself faithful, whatever the outcome. Thank you to everybody for your constant encouragement and prayers.
-Amy
Psalm 46:1-3; 10-11—God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging… “Be still, and know that I am God; I will be exalted among the nations, I will be exalted in the earth.” The Lord Almighty is with us; the God of Jacob is our fortress.
Wednesday, September 8, 2010
progress!
Today Aron had an appointment with the neurosurgeon and was transported via ambulance from San Pedro to Anaheim. Transport went smoothly, and he even took a bit of a nap during the ride.
I don't know where to start to report on the appointment other than it went as well as we could have hoped. Aron responded to the doctor with hand squeezes, opening his eyes on command, and moving his toes on command. He was responsive and the doctor saw it! My dad told me the doctor was smiling and clearly saw Aron's progress. So clearly, in fact, that she is requesting aggressive physical therapy and a crainoplasty.
While no one, including the neurosurgeon, can predict outcome, one thing is certain - he is improving. I am united with my family and Amy and her family, in the belief that our prayers are being answered.
The above picture is a Nova at a northern California Nova event - hundreds of stickers were handed out and placed on cars and get well posters were signed for Aron. There was a moment of silence and prayer as people who share Aron's passion petitioned God's love and healing for one of their own.
Sunday, September 5, 2010
Sunshine
I saw my brother this weekend for the first time in several weeks. It's hard not to see him for long stretches because I rely on other people for updates, but at the same time, I get to see his progress more dramatically. As Amy mentioned in her post last week, the biggest change is in how alert and awake he is.
My mom and I arrived yesterday to find him with his eyes open. Recently, his open eye moments have been much more frequent, and yesterday, he spent the majority of the time with eyes wide open. Sometimes he looks at us, sometimes he looks at the tv, and he seems to really focus on pictures when we show them to him.
Accomplishments lately include: pointing his finger on command (he only did it once, but he did it fairly quickly after I showed him what I wanted him to do), moving his legs on command (thank you Jimmy!), and generally following commands more frequently. The nurses and therapists will tell us "he squeezed my hand when I asked" - it's nice to know other people are having success with commands as well.
Today was the first day Aron has been outside in almost three months. After a lot of maneuvering, Aron was outside on the patio. It is a beautiful day today, and it was nice to be able to spend some time with him in the fresh air with fewer disturbances. Some friends from church and Griffiths Middle School visited, and he did a thumbs up a couple of times for them, one time almost immediately after I asked.
These recent developments have me thinking. He can hear us, that is certain, and he is sometimes able to act upon what we tell him. Now more than ever, is the time to speak positively to him. We've been encouraging him each time we see him with his eyes open. We tell him he is getting better, that he needs to keep trying, and how much we love him.
Every evening, my mom is at the hospital, and there is almost always someone there from our family or Amy on the weekend. If you want to spend some time alone with him, he doesn't have people with him on weekday mornings and early afternoons. If you're there with him, this is what we'd like to request: speak positively - it is ok to tell him he had a a skateboard accident, but be sure to tell him he is getting better. If you'd like to try to get him to follow commands, stick to simple things and stay on the same one (for example, don't ask him to do hands, legs, ect, all at the same time, just work on one thing and keep repeating yourself.)
As far as prayer: my family, Amy and her family, and Aron's friends are appreciative of everyone's constant support. Specific things to pray for now: first and foremost that the function in Aron's brain is restored. We are also advocating that Aron be approved for more therapy now that he is more awake, please pray that he is approved for this and can benefit from the extra stimulation. We feel Aron is very close to being considered for relocation to an advanced rehab facility. Please pray hard that Aron can wake up enough to be transferred to rehab. When we compare where we were a month ago, Aron has made major progress - please pray for progress progress progress.
On a personal note: lately random memories of Aron have been popping into my head, things I haven't thought of in years - his escapades with explosives and the time he almost blew up the pool, the summer he decided to learn how to ride a unicycle, the time we were pulled over and almost arrested on Christmas day night (remember, Jordan?), the time he decided to stop brushing his hair to see if he could grow dreadlocks (there were three), the bowling scores and quarter mile times he would stick to the fridge, following him down double black diamond runs - I could go on forever. I realize that many people reading this blog have all kinds of memories with him too. I ask that when these things do pop into your head, that you send up a prayer rather than getting sad. It's what I'm trying to do rather than sinking into my sadness. We all miss him so incredibly much.